Meet Robin

For Robin Byrn, advocacy isn’t a political choice – it’s a promise made from love.

For over five decades, Robin has walked alongside her sister Jennie, who was born with Down syndrome in 1969. From childhood through adulthood, Robin has watched Jennie grow into a vibrant, joyful woman, thanks in large part to Medicaid-funded services and strong community support.

Jennie has lived in a Group Home in Spencer, Iowa, after graduating from high school in 1990. Run by Hope Haven (formerly Sunshine Services, Inc.), the home became a lifeline for Jennie, providing structure, companionship, and independence. Instead of being isolated at home with their widowed mother, Jennie had the chance to live among peers and participate in daily life on her own terms.

For many years, Jennie also worked in a sheltered workshop, proudly sorting pop cans and assembling small industrial parts for local companies like Eaton Corporation. These jobs were more than just a source of income; they gave Jennie pride, purpose and connection to the community.

“I have photos of Jennie working and smiling on the can line while sorting cans with others at Sunshine.”

But when Iowa ended all sheltered workshops due to shifting policies, Jennie and many like her lost a valuable opportunity to engage with the world through work. Robin saw how quickly a good life can become uncertain when public support systems disappear.

This isn’t just Robin’s story – it’s the story of thousands of families who love someone with a disability and rely on Medicaid to ensure their safety, health and dignity. “These individuals are not trying to abuse federal and state funding – they do not even know how to do that,” Robin says. “Rather, they rely on Medicaid to pay for their health care.”

In the 1980s, when her father was undergoing heart surgery at the Mayo Clinic, she reached out to the Laura Baker Services Association in Northfield, Minnesota for respite care. They welcomed Jennie with open arms during a family crisis, showing Robin what compassionate care could look like. “I have donated to Laura Baker, and always will, in thanks for this kindness and generosity in our time of need,” Robin promises.

Now, Robin uses her voice to protect what remains of that safety net. She regularly contacts senators and state leaders, urging them to preserve Medicaid and other essential services not just for Jennie, but for every family who deserves to see their loved one live with dignity, inclusion, and joy.